Wednesday, August 19, 2015

ALS Ice Bucket Challenge: A Billion for Bob


A couple of weeks ago, the lovely and multi-talented Karyn O'Bryant invited me to a unique voice over industry event at Deyan Audio Studios in Tarzana, CA.

I was pretty excited about meeting the people at Deyan Audio. They're famous for producing over 12,000 audiobooks, and for winning numerous Grammys and Audie Awards. Really, if you want to record audiobooks (and I do), you want to know Deyan.

But this wasn't a hand-out-your-business-card-and-schmooze type of event. There's much more to the story. 

Bob and Debra Deyan founded their business in 1990 in a closet in their home. Many voice artists record from home this way, but Bob and Debra expanded to include two locations, both a good deal larger than closets. Now Deyan Audio employs 150 or more audio engineers and directors and has provided freelance work for as many as 1500 voice actors, all who clearly love and respect Debra and Bob.

In 2013, Bob Deyan was diagnosed with Amyotrophic Lateral Sclerosis (ALS), a neuron-killing disease for which there is no cure. We had gathered at Deyan to make this video for Bob:




The palpable love of all these people made me wish heartily that I'd known Bob Deyan. By the time PJ finished talking my cheeks were wet with tears. But I chickened out of getting doused with actual water. I mean geez, I was wearing a dress. However, I wanted to make a contribution so I made a behind-the-scenes video of the rehearsal:




Bob died one year ago today at the young age of 56, one week after his friends made this for him:




There are many things you can do to help find a cure for ALS:

1.) Accept the Ice Bucket Challenge!

2.) Record a video of yourself dumping a bucket (or a cup) of ice water over your head to increase awareness of ALS. You can use an existing body of water (my friends used pool water the other day), or another drought conscious substance in place of water (dirt!). Challenge at least three people to do the same to support the search for a cure.


3.) Upload your video and challenge/tag at least three others. You can also send it to the ALS Association Golden West Chapter and they'll do it for you!


4.) Give to The ALS Association Golden West Chapter.



Update: Johns Hopkins University has just this week announced a breakthrough in ALS research. All of this is thanks to the Ice Bucket Challenge. So join in! It's definitely worth it!

I'm uploading my video and challenging all of you here. You can douse yourself with water if you like, but we're in California and there isn't a lot to spare. So feel free to cut to the chase.

17 comments:

Kalei's Best Friend said...

What a speech and tribute to such a worthy cause and person.. I am sure he is smiling down....

Petrea Burchard said...

It is indeed a great tribute. PJ's speech had me in tears.

altadenahiker said...

I had a Bob in my life who died from ALS. It's a merciless disease, causing a physical decline that's brutally swift. The ALS Organization and ALS Community have my full and total support, and I hope with all my heart that stem cell research eventually leads to a cure, or at least improved quality of life. I'm glad you posted this.

William Kendall said...

A wonderful tribute!

LOLfromPasa said...

I'm with William, it is a wonderful tribute! Good of you to share with us.

Petrea Burchard said...

Thank you, Karin. I'm sorry about your Bob, and all the people who've suffered from ALS. This campaign raised a lot of awareness and money last year, and it's bound to be great once again.

Thank you, William and Lauren!

Ms M said...

Wonderful! Thank you for sharing this. ALS is a merciless disease, and I hope more research will be funded to try and find some way to slow - or stop the progression of this disease.

Petrea Burchard said...

The Ice Bucket Challenge has already funded breakthrough research. I just heard about this: http://wapo.st/1JhWtQI

Petrea Burchard said...

This means there's hope, so let's keep it up!

Petrea Burchard said...

Kalei's Best Friend sends this from ABC news:
http://6abc.com/health/ice-bucket-challenge-ices-an-als-breakthrough/948248/

The breakthrough at Johns Hopkins is a big deal, and the Ice Bucket Challenge made it happen.

Pasadena Adjacent said...

It's a dreadful disease. I'm so glad the money has led to promising research.

Petrea Burchard said...

My friend Karyn (pictured) lost her father to Alzheimer's and her friend Bob to ALS. She says, "Alzheimer's steals your brain and ALS steals your body." They both sound dreadful to me, and if we can find cures, it's worth our while to do what we can.

Shell Sherree said...

Beautiful tributes and such a worthwhile cause. It sounds like things are going in a very positive direction with the research progress. You're a good soul to spread the word, dear Petrea.

Petrea Burchard said...

Things are moving very well, yes! I'm excited to see what a difference people can make.

llandudnopictures said...

Well done for contributing in such a way, it's very important to spread the word.

Petrea Burchard said...

I can think of an easy way you and your friends could do this, Geoffrey, with all that water you've got in Llandudno!

john robert said...

this is a cool side thanks! for the great content